The HCM Registry

Novel Predictors of Outcome in Hypertrophic Cardiomyopathy

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What happens during a visit?

22 September 2014

During the visit, we carry out the following:

  1. Informed Consent. We will check if you are suitable for the study. If you are satisfied with the information we have provided and wish to take part, you will be asked to sign a consent form.
  2. Medical history and physical examination. We will ask some questions about your medical and family’s health history. We will also perform a simple physical examination e.g. blood pressure and heart rate.
  3. Electrocardiogram (ECG). If you have not had an ECG in the last 24 months, we will measure the electrical activity of your heart by attaching sticky pads to your chest.
  4. Echocardiogram. If you have not had an echocardiogram in the last 24 months, we will take a safe and painless picture of your heart using an ultrasound. Ultrasound waves then create images of your heart on the scanner monitor.
  5. Cannula and Blood Test. A cannula is a small tube which we will insert into the blood vessel (vein) in your arm using a needle to take blood samples.
  6. Cardiac Magnetic Resonance (CMR)
People enrolled 2750
The HCMR study is well under way, with the first participant enrolled in April 2014 at research site 001.  There are now 44 active sites; 22 sites in North America and 22 sites in Europe. The study is now following up the 2750 patients that were enrolled and is no longer recruiting.

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The Health Research Authority’s National Research Ethics Service Committee – South Central Oxford A, has reviewed and approved this research study and website

HRA NRES Research Ethics Reference Number 14/SC/0190

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  • What is HCM?
  • About the HCM Registry
  • Testing and Analysis
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