The HCM Registry

Novel Predictors of Outcome in Hypertrophic Cardiomyopathy

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About the HCM Registry

The purpose of the HCM Registry is to find ways of predicting the risk of developing complications associated with HCM, so that the most appropriate advice and treatment can be given to patients.

This study will carry out a careful and thorough assessment of people with HCM using new sophisticated tests to identify markers that are associated with these complications.

The information we gather from this research will help doctors in the future identify people with HCM who are at higher risks of developing complications as a result of the disease and give the most appropriate treatment.

Who Is Carrying Out This Research?

This research is funded by the National Institutes of Health (nih.gov), grant number HL117006, by a grant from Cytokinetics, and by the Thomas Fund at the University of Virginia.

The University of Virginia, USA, and the University of Oxford, UK, are organising this research. This study involves 40 research sites in the U.S, Canada and Europe and will enrol 2750 people with HCM over 2 years, followed up for up to 5 years. See Study Locations.

This study has been listed in clinicaltrials.gov (identifier NCT01915615), a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.

People enrolled 2750
The HCMR study is well under way, with the first participant enrolled in April 2014 at research site 001.  There are now 44 active sites; 22 sites in North America and 22 sites in Europe. The study is now following up the 2750 patients that were enrolled and is no longer recruiting.

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The Health Research Authority’s National Research Ethics Service Committee – South Central Oxford A, has reviewed and approved this research study and website

HRA NRES Research Ethics Reference Number 14/SC/0190

© 2023 Oxford Centre for Clinical Magnetic Resonance Research, University of Oxford · Site by Thameside Media

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  • Home
  • What is HCM?
  • About the HCM Registry
  • Testing and Analysis
  • FAQs
  • Study Locations / Contacts