Contacts

Professor Stefan Neubauer
University of Oxford
Phone: +44 (0)1865 226829
Email: neubauer_pa@cardiov.ox.ac.uk
(PA to Prof. Neubauer)

Contacts for Study Locations in Europe:

Germany, Berlin
Charite – Universitatsmedizin Berlin
Campus Buch, Lindenberger Weg 80, 13125 Berlin, Germany
Contact 1: Prof. Dr. med. Jeanette Schulz-Menger (Principal Investigator)
Email: jeanette.schulz-menger@charite.de
Contact 2: Dr. Fritschi
Phone: + 30 940153536
Email: simone.fritschi@charite.de
Contact 3: Mrs. Köhler (Study Coordinator)
Phone: + 49 30 9401 12939
Email: annette.koehler@charite.de

Germany, Heidelberg
Universitats Klinikum Heidelberg
Abteilung für Innere Medizin III, Kardiologie, Im Neuenheimer Feld 410, 69120, Heidelberg
Contact 1: Dr. med. Sebastien A Buss (Principal Investigator)
Phone: +6221-56 32331
Email: Sebastian.Buss@med.uni-heidelberg.de
Contact 2: Mr. Helm (Study Coordinator)
Phone: +6221-5638699
Email: daniel.helm@med.uni-heidelberg.de

Germany, Stuttgart
Robert-Bosch-Krankenhaus
Auerbachstraße 110, 70376 Stuttgart, Germany
Contact 1: Prof. Dr. med. Heiko Mahrholdt (Principal Investigator)
Phone: +49 711 810 16048
Email: Heiko.Mahrholdt@rbk.de
Contact 2: Mrs. Ina Wenzelburger (Study Coordinator)
Phone: +711/8101-5929
Email: Ina-Kristin.Wenzelburger@rbk.de

Italy, Bologna
Universita di Bologna
Bologna, Italy, 40138
Contact: Elena Bigini, MD
Phone: +39 051 349 858
Email: elena.biagini73@gmail.com

Italy, Florence
Referral Center for Cardiomyopathies
Careggi University Hospital
Florence, Italy
Contact 1: Dr. Iacopo Olivotto
Contact 2: Prof Stefano Colagrande
Email: olivottoi@aou-careggi.toscana.it

Italy, Milan
San Raffaele University Hospital
Milan, Italy, 20132
Contact: Paolo G Camici, MD (Principal Investigator)
Phone: +39 0226436206
Email: camici.paolo@hsr.it
Research Nurse: Alessandra Esposito
Phone: +39 3470984577
Email: esposito.alessandra@hsr.it

Italy, Rome
Sapienza University
Rome, Italy, 00185
Contact: Camillo Autore, MD (Principal Investigator)
Phone: +39 0633775868
Email: camillo.autore@uniroma1.it

Netherlands, Amsterdam
VU University Medical Center
Amsterdam, Netherlands, 1081 HV
Contact: Albert C van Rossum, MD (Principal Investigator)
Phone: +31 20442244
Email: ac.vrossum@vumc.nl

Netherlands, Rotterdam
Erasmus MC
Rotterdam, Netherlands, 3015 CE
Contact: Michelle Michels, MD, PhD (Principal Investigator)
Phone: +31 10 7035548
Email: m.michels@erasmusmc.nl

Contacts for Study Locations in North America:

Canada, Alberta
University of Calgary
Calgary, Alberta, Canada, T2N 2T9
Contact: James White, MD (Principal Investigator)
Phone: 403-944-8806
Email: jwhite.imaging@gmail.com

Canada, Ontario
Toronto General Research Institute (TGRI), Toronto General Hospital
Toronto, Ontario, Canada, M5G 2C4
Contact: Andrew Crean, MD
Email: Andrew.Crean@uhn.ca

Canada, Quebec
McGill University Health Center
Montreal, Quebec, Canada, QC H3G 1B3
Contact: Eleanor Elstein, MD
Email: Eleanor.elstein@mcgill.ca

Canada, Quebec
Montreal Heart Institute (Institut de Cardiologie de Montreal)
Montreal, Quebec, Canada, H1T 1C8
Contact: Francois-Pierre Mongeon, MD (Principal Investigator)
Phone: 514-593-2557
Email: francoi.pierre.mongeon@montreal.ca

Canada, Quebec
Quebec Heart Institute
Quebec, Canada, G1V 4G5
Contact: Eric Larose, MD
Phone: 418-656-8711 ext 3386
Email: Eric.Larose@criucpq.ulaval.ca

United States, Connecticut
Yale University
New Haven, Connecticut, United States, 06520
Contact:  Chris Williams
Phone:  203-737-6407
Email: christina.williams@yale.edu

United States, Illinois
Bluhm Cardiovascular Institute
Northwestern University
676 North St Clair Street, Suite 1700
Chicago, IL 60611
Contact: Leah Canvasser Research Assistant
Phone: 312-926-2884
Email: lcanvass@nm.org

United States, Maryland
HCM Center of Excellence & T. Abraham, M.D.
Johns Hopkins School of Medicine
Division of Cardiology
600 N. Wolfe St. / Blalock 910
Baltimore, MD 21287
Contact: Joseph W. Leidy, Program Coordinator
Phone:  443-287-2938
Email:  JLeidy1@jhmi.edu

United States, Massachusetts
Beth Israel Deaconess Medical Center
Boston, Massachusetts, United States, 02215
Contact: Evan Appelbaum, MD
Email: eappelba@bidmc.harvard.edu

United States, Massachusetts
Brigham and Women’s Hospital
Contact: Stephanie Harris, MS, CGC Licensed Genetic Counselor
Phone: 617-525-7168
Email: sharris19@partners.org

United States, Massachusetts
Tufts Medical Center
Boston, Massachusetts, 02111
Contact: Martin S Maron, MD
Phone: 617-636-8066
Email: mmaron@tuftsmedicalcenter.org

United States, Michigan
University of Michigan Health System
Ann Arbor, Michigan, United States, 48109-56444
Contact: Adam Helms, MD (Principal Investigator)
Phone: 734-764-4500
Email: adamhelm@med.umich.edu

United States, Minnesota
Mayo Clinic
Rochester, Minnesota, United States, 55905
Contact: Eric Williamson, MD (Principal Investigator)
Phone: 507-284-2511
Email: ewilliamson@mayo.edu

United States, New York
NYU Medical Center
New York 10016
Contact: Mark Sherrid, MD
Email: msherrid@optonline.net

United States, New York
St. Luke’s Roosevelt University Hospital of Columbia University
New York, New York, United States, 10019
Contact 1: Mark V Sherrid, MD (Principal Investigator)
Contact 2: Bette Kim, MD
Email: bekim@chpnet.org

United States, New York
Weill Cornell – New York Presbyterian
New York, New York, United States, 10065
Contact: Jonathan Weinsaft, MD (Principal Investigator)
Email: jww2001@med.cornell.edu

United States, North Carolina
Duke University Medical Center
Durham, North Carolina, United States, 27710
Contact: Han Kim, MD
Email: han.kim@duke.edu

United States, Ohio
Cleveland Clinic
Cleveland, Ohio, United States, 44195
Contact: Milind Y Desai, MD (Principal Investigator)
Phone: 216-445-5250
Email: desaim2@ccf.org

United States, Oregon
Oregon Health Science University
3181 SW Sam Jackson Park Road
UHN-62 Portland, OR 97239
Contact 1: Steve Heitner MD (Principal Investigator)
Phone: 503-494-9760
Email: Heitner@ohsu.edu
Contact 2: Aynun Naher (Coordinator)
Phone: 503-494-3313
Email: nahera@ohsu.edu

United States, Pennsylvania
Hospital of the University of Pennsylvania (Penn Heart and Vascular Center)
University of Pennsylvania
Heart and Vascular Center
2 East Perelman Pavilion
3400 Civic Center Boulevard
Philadelphia, PA 19104
Contact: Anjali Tiku Owens, MD  Assistant Professor of Medicine
Phone: 215-615-0812
Email: anjali.owens@uphs.upenn.edu

United States, Texas
Methodist DeBakey Cardiology Associates
Houston, Texas, United States, 77030
Contact: Sherif F Nagueh, MD (Principal Investigator)
Phone: 713-441-3963
Email: SNagueh@houstonmethodist.org

United States, Virginia
University of Virginia Health System
Charlottesville, Virginia, United States, 22908
Contact 1: Christopher M Kramer, MD
Phone: 434-243-0736
Email: ckramer@virginia.edu
Contact 2: Michael Salerno, MD, PhD (Principal Investigator)
Phone:  434-982-6135
Email: ms5pc@virginia.edu

Other Useful Links

For further information about this study see clinicaltrials.gov
HCMA – Hypertrophic Cardiomyopathy Association 4hcm.org
Cardiomyopathy Association: cardiomyopathy.org
Oxford University Hospitals: ouh.nhs.uk
INVOLVE website: invo.org.uk